All my life, I have had a fine motor coordination problem with my hands. My cursive writing is illegible. When I was in Catholic elementary school the nuns made me practice my cursive for an hour every day for an entire school year before concluding that I simply couldn’t improve.
My printing is only somewhat better, and if I am in a hurry, it too is illegible. Even my signature shows symptoms of actual brain damage in that my repeated signatures have different numbers of strokes. Computers have been a godsend to me, though not without their problems, too.
I have always simply taken it for granted that I would have a tough time using my fingers for anything delicate. So, I wasn’t surprised when my use of a smartphone was plagued with misses and sliding finger taps, making my use of apps in general and smartphone typing systems in particular fraught with mistakes. I have to double-check everything, even content I have created many times before. I also have a terrible time using the same amount of pressure with my finger each time I do so, often producing no result or one that shows I pushed too long.
Entirely separately, I got tired of wiping the greasy finger marks off my smartphone every morning and decided I would try using a stylus to reduce the grime. I assumed I would have as much trouble with the stylus as I did with my fingers-maybe even more.
I was wrong.
There was a vast difference in the quality of my input when I used the stylus as compared with my finger. My error rate dropped very noticeably when I used the stylus, making my smartphone use more enjoyable and productive.
So, If you have trouble with fine motor tasks and it shows up on your smartphone, you might want to try a stylus too.
You can get styluses in bulk for about $.25 each or you can get better quality ones almost anywhere. The link below is to the Amazon page for styluses that show you the enormous variety and broad cost points for these products. Check to make sure your choice works with your device.
I’ve had a lot of changes this year, and although some of them have been frustrating, I hope that I am still in good standing on your nice list (you wouldn’t let me take a peek at that list sometime would you?). I bought a home last year and when you visited you may have noticed that we have quite a bit of work to do to make it more accessible. In particular, I could use some help transferring in and out of my new wheelchair, which I named the Flash. I’m sure you know that adjusting to a new wheelchair or sleigh can take some time. That is why this year, my requests involve AT for transferring.
It is really difficult for me to change positions in bed while I’m sleeping. I also have a hard time swinging my legs to the side the bed when I’m ready to get up. After consulting with a physical therapist and an occupational therapist I think a bed rail may be part of the solution. Not only would it help with rolling over during the night, I think it would also help, along with my leg lifter, to get my feet onto the floor and ready for a transfer. There are many different lengths and shapes and types of handles but I think a short rail like this SturdyCare bed rail may do the trick. It comes with a bonus nightlight too! Between now and Christmas, I’m going to be checking to see if any of the Michigan Loan Closets might have something that will fit the bill, but if not, it sure would be a great gift.
After getting out of bed the next challenge I have is transferring into my wheelchair. I’d like to be less reliant on my caregivers. Recently, I tried to sit-to stand transferring device that still allows me to use my own leg strength to stand but also has a sling that supports my back to stay in the standing position. After that, someone just pushes the sit to stand over to my wheelchair and it lowers me back down into the seat. Unfortunately, these devices are quite expensive. I know this may be something that you won’t be able to get me this year, but perhaps you could put in a good word with my insurance company. I’m using the resources in our funding strategy – a letter of medical necessity for example, but I think a good word from you could never hurt.
Thanks for considering my wish list, Santa. More than anything though, I know there are many others who need AT too, so I hope others receive the items they need.
Recently, a virus swept through my house and left my partner and me in slow recovery mode. As I think about how we got through the worst of it, I now realize that Assistive Technology definitely made the process better.
After years of apartment living, my partner and I purchased our house a few years ago. Our first winter in our house was a sobering experience; it was one of the coldest winters on record and our heat bill was really expensive. After talking with some friends of ours who own a house as well, we invested in a few space heaters which we put in our bedroom and den. We also bought some thick, microplush blankets. Now instead of keeping the thermostat in the low-mid 70’s in the cooler months, we can turn it down when we head to bed and switch on our space heaters; the heaters cost less to run than keeping the furnace at a higher temp to heat the whole house. While I was getting through the worst of the virus, I was so very thankful for the space heater in our bedroom. I closed our bedroom door, set the heater to 80 degrees, and fought the chills underneath our thick blankets. The heater we purchased for our bedroom is a tall, ceramic tower heater with remote. I really appreciate that I can change the temperature from bed using the remote! The heater also has an oscillation function so it slowly tuns to blow warm air all over the room. One thing I’ve done to get even better air circulation is to place the heater up on a sturdy chair so that it’s up off of the floor and circulates a little more effectively. Normally I would be nervous about keeping a heater off of the ground, but the heater we have has a tip-over and overheat protection for added safety (I keep it unplugged when not using it).
I was the first one in our family to get the virus (we tried to keep my partner on the other side of the house for the most part so he wouldn’t catch it). While I was battling the germs, I found it incredibly helpful to be able to text with my partner; even if he couldn’t be in the same room as me, we could still text and share words of comfort. Though, sometimes when I tried to use the voice to text feature, the message got a little lost.
When I started feeling a little better, but still didn’t feel I could get out of bed, I found the bright, direct light from my smart phone hurt my eyes (and head) too much to check facebook. I found solace in reading books on my Kindle Paperwhite, “Kindle Paperwhite guides light toward the surface of the display with its built-in front light—unlike back-lit tablets that shine in your eyes—so you can read comfortably for hours without eyestrain.” For more about supportive features of e-readers, check out my Book Scents and E-Reader Sense blog posts (Part 1 & Part 2).
What AT do you use to feel better when you’re sick?
As Thanksgiving approaches, I see friends and family creating daily gratitude posts on social media. It’s a lovely idea, and although I am grateful for many things, I just don’t have the forethought to post every day. However, writing this post close to the holiday has led me to think about my gratitude toward assistive technology.
I use so many pieces of assistive technology in my daily life, it’s hard to narrow it down to just a few. I’d have to say I’m most grateful for my power wheelchair, my accessible van, and those handy reachers.
My powerchair, the Flash (read all about it in my previous blog post) is a new addition to my life, and the most critical. Of course it helps get me around, but it also has functions that help my posture and positioning, allow me to get into bed independently, and enables me to reach things around the house and in places like the grocery store.
I am extremely grateful to have an accessible vehicle. It allows me freedom in my work and personal life beyond that which I can have with public transportation. Accessible vehicles can be quite expensive, as evidenced by the number of calls we receive for people looking funding avenues. I am grateful for our Assistive Technology Loan Fund that provides loans specifically for the purchase of AT, and for the ATXChange, where used accessible vehicles are often posted.
Reachers – Simple, low cost, but indispensable. I have one in even room in the house and even an extra backup in case I need to reach a reacher that I dropped. They come in all different shapes and sizes. My favorite type, the Ergomate, has a small pull lug to bring dropped items closer and a magnet on the end. Quite handy for picking up those tiny things that fall, like paper clips.
I have a long history of battling insomnia. Lately, I have been having even more problems sleeping following a series of life traumas and increased anxiety. My therapist suggested trying a weighted blanket. I had previously heard of weighted blankets as calming options for people on the Autism Spectrum. I never knew they have a variety of other uses.
“Weighted blankets are one of our most powerful tools for helping people who are anxious, upset, [and feeling out of sorts],” says Karen Moore (link is external), OTR/L, an occupational therapist in Franconia, N.H. These special blankets are filled with weighted pellets, which are sewn into compartments to keep them evenly distributed. Weighted blankets are also sometimes marketed for general use as an aid to sleep and relaxation.
“These blankets work by providing input to the deep pressure touch receptors throughout the body,” Moore says. “Deep pressure touch helps the body relax. Like a firm hug, weighted blankets help us feel secure, grounded, and safe.” Moore says this is the reason many people like to sleep under a comforter even in summer.
What a revelation! After posting on Facebook, to friends inside and outside the disability community, looking for local resources to try a weighted blanket, several friends chimed in that they too thought these blankets would be helpful for them. Some even said they were using one without realizing it—heavy comforters were their preference all year. One friend, who runs an Autism Center, connected me with some online options for buying weighted blankets and making your own. Another connected me with Christie DePrekel at Peaceful Product . These chance connections via social media have changed my life!
Christie of Peaceful Product is local and offered me several weights of blankets to try as I was hesitant to commit to the investment without knowing if the blankets would help me—though I had a feeling they would. I stopped by later the same day to pick up the sample blankets.
I tried a 15 pound and a 10 pound blanket and found I far preferred the heavier variety—and that my sleep and anxiety were much improved. I slept soundly (for me) the night before I had to give a speech to a nationwide audience—which normally would not be how I’d sleep before such a big event. I have found I also like sitting on the couch with the calming weight on me.
Christie mentioned that some members of her family have sensory processing disabilities, which is why she started making the blankets herself—looking to make quality items to meet their needs. Talking to her more about sensory processing, I realized that I too am sensitive to sound, pressure, smell, sight, and touch. Since I was a child I remember self-soothing by rolling my hands back and forth over a favorite blanket. I also achieve great peace when watching repetitive things like sprinklers or machines at work. I have met others friends who have the same type of soothing response. I also have created my own type of squeeze machine having my partner hug me hard and/or lay on top of me while I’m on the floor, comforted by the intense pressure (until it’s hard to breathe). I wonder if it is all related?
Christie has seen weighted blankets help people with Autism, Aspergers, ADHD, Anxiety, PTSD, Insomnia, Sensory Processing Disorder, and Restless Leg Syndrome.
After deciding I definitely wanted my own weighted blanket, I met Christie at a fabric store and picked out some microplush fabric to cover my blanket (you should have seen me at the store with my eyes closed plunging my hands into the bolts of fabric to test their softness and soothingness). I then specified the size and weight I wanted, and one week later, my blanket was ready.
I now sleep with it every night. The pressure is comforting on a primal level. I have trouble with night sweats, so the lightweight microplush has been helpful (the sample blankets were a thick fleece). If the weight didn’t affect the heat of the blanket at all, I would have gotten even heavier of a blanket.
The formula commonly used to choose the weight of the blanket is 10% of the body weight plus 1 or 2 pounds for children. In older teens and adults this formula can be quite heavy so trying different weights like I did might be your best option. I found that in my arms a 10 pound blanket felt very very heavy. But, once that weight was spread out over me, I thought it was way too light.
Have you tried a weighted blanket or have you been doing your own version of weighted blanket sleeping without even realizing that is what you were creating on your own?
Do you think something like this might work for you or someone you know?
How often do you listen to music? Do you turn it on when you wake up? Do you listen in the car/transit as you head to work & go about your day? Is it on when you’re in the shower? When you’re doing chores? While working out? Maybe a better question to ask is when is music not on? In my life, music is almost always on (either I’m actively listening or have it on in the background); that is to say, when I’m not listening to podcasts. Music has a powerful, positive effect on my mood, productivity, and attention. “It turns out that a moderate noise level is the sweet spot for creativity. Even more than low noise levels, ambient noise apparently gets our creative juices flowing, and doesn’t put us off the way high levels of noise do. The way this works is that moderate noise levels increase processing difficulty which promotes abstract processing, leading to higher creativity. In other words, when we struggle (just enough) to process things as we normally would, we resort to more creative approaches.”
Music can illicit memories and feelings from a different time in my life and gives me all the good nostalgic feels. Stevie Wonder was quoted saying, “Music, at its essence, is what gives us memories. And the longer a song has existed in our lives, the more memories we have of it.”
Music has been able to lessen the pain of a headache and give me more energy & motivation. Usually if I’m anxious, worried, or upset it’s partly because it’s been a while since I heard a song I enjoy. As soon as I can turn on music which I have chosen, I feel relief and hope; music is my Assistive Technology. A study showed that, “Preferred music was found to significantly increase tolerance and perceived control over the painful stimulus and to decrease anxiety compared with both the visual distraction and silence conditions. Pain intensity rating was decreased by music listening when compared with silence.”
While I was growing up, music was strongly integrated into many things that my family did; especially family road trips where we would listen to (and sing along with) Crosby, Stills, & Nash! I learned my love (and need) of music from my parents; I learned how it can help me throughout my daily life.
When I was in high school, my family got cable and I got to sneak listening to 2 music video channels, MTV and VH1 (I still miss those pop up videos!) During that time in the 1990’s, music was still on CD’s and downloading 1 song from the dial up internet took hours (there was no YouTube yet!) I remember it being such a struggle to listen to the music that I wanted to hear (tape recording songs off of the radio when they were played was a challenge and I always got some of the DJ talking over part of the songs). As I’ve grown, so has technology. I read an article recently about Menials (or Xennials) growing up with the Internet & technology. It shared, “As we were growing up, technology matured along side us. We had time to get used to it and were still young enough to feel right at home with it.” I feel like the same applies to access to music. Starting with cassette tapes, moving to CD’s, then to MP3 players, and now to streaming services on our smart devices.
This year I decided to start paying for a subscription to Amazon Prime’s music streaming service, Prime Music. I now have access to virtually all of the music I want (the teenager inside of the 32 year old me rejoices daily about this!) I can listen on demand on my iPhone, in the car, on my computer, etc. Having access to music that I choose to when I need to listen to is extremely cathartic and helpful for me. I can listen to old favorites from high school years (oh hello Spice Girls), expand my appreciation for indie music, and enjoy new music (I have fallen in love with Miles Davis’ ‘Concierto de Aranjuez: Adagio‘)! As Tom Petty once said, “Music is probably the only real magic I have encountered in my life. There’s not some trick involved with it. It’s pure and it’s real. It moves, it heals, it communicates and does all these incredible things.”
I have to admit, this is my favorite blog post of the year. For the past few years, each Halloween, I have written a blog that features Halloween costumes that incorporate mobility devices and other AT into them. Every year I find costumes that are more innovative than the year before. Not only is it a fun topic, but it gives me a good feeling because these costumes represent not only pride in one’s disability identity but pride in one’s assistive technology as well. So often, ableism and internalized ableism makes people feel as though their assistive technology is something shameful or something that should be hidden. By creating a costume that uses AT in its design, it is a way of claiming your assistive technology, and your disability with pride. So without further ado here are the top five Halloween costumes I wish I had thought of as a kid.
A Giraffe in its Natural Habitat
Winter is Coming
No High Sticking!
My Little Pony Chariot
Halloween is a special time for many kids and Magic Wheelchair is an organization that strives to make it, as they say, “epic”. A volunteer group of designers and builders work together to create extra special costumes for kids with disabilities picked through an application process each year. The My Little Pony costume above is an example of their magic.
Costumes are not the only barrier for people with disabilities on Halloween. The Connecting for Kids website has helpful considerations to think about related to creating an inclusive Halloween. For example:
Keep in mind that children who are nonverbal may not be able to say “trick-or-treat” or “thank you.” Do not push for verbal responses and be sensitive to children who do not give expected social feedback.
Be prepared to describe treats for children with blindness or low vision issues.
Make sure that you are handing out treats in a well-lit, accessible area. If your house is not accessible, consider handing out treats in a different location (for example, in the driveway or in a community common area).
When addressing trick-or-treaters, make sure they can see your face and mouth as you speak. This can help children who struggle with speech and hearing issues. Better still, learn some simple Halloween signs (video).
Be observant. Children with anxiety or other issues may wander from a caregiver or safe area.